Foregrounding of Complexity as the Baseline

Neurodiversity and the social model for bodyminds are about the “foregrounding of complexity as the baseline.”

I foreground all of this to underscore that there is a neurological difference, or a spectrum of neurology, that must be attended to. The movement for neurodiversity is not interested in homogenizing experience. We are different and we require different accommodations. On the other hand, my interest is not in the neural per se, which I find quickly loses its usefulness in such discussions, particularly in the ways it can be taken up in the humanities and the social sciences as an explanatory category. The neurological is only one point of departure for the question of autistic perception, and of autism more broadly.

So I would say that the concept of the neuropolitical is not particularly interesting to me. I want to support the movement for neurodiversity because I find it exciting and deeply important in its foregrounding of complexity as the baseline. And I want to think about the ways in which an engagement with neurodiversity affects how we think of the political and how we effect change. The political emphasis here is less on neurology than on the question of how normative modes of being subsumed under the unspoken category of the neurotypical organize experience, and how an engagement with neurodiversity changes the questions we ask and the actions we support.

Neurotypicality is a grounding narrative of exclusion. The neurotypical is the category to which our education systems aspire. It is the category to which our ideas of the nuclear family aspire. And, it is the category on which the concept of the citizen (and by extension participation in the nation-state and the wider global economy) is based.

In the context of education, which is the one I am most knowledgeable about, the mechanisms for upholding the neurotypical standard are everywhere in force. Every classroom that penalizes students for distributed modes of attention organizes learning according to a neurotypical norm. Every classroom that sees the moving body as the distracted body is organized according to a neurotypical norm. Every classroom that teaches predominantly for one mode of perception is organizing its learning according to a norm. Every classroom that knows in advance what knowledge looks and sounds like is working to a norm.

Intelligence, understood as the performance of a certain kind of knowledge acquisition and presentation, is built on the scaffold of neurotypicality as the unspoken norm. To speak of the normative tendencies of education is not new. My concern is with what remains largely unspoken in that conversation. Having “special needs” classrooms upholds neurotypicality, for instance, as the dominant model of existence. Drugging our children because of their attention deficit is upholding a neurotypical norm. Sending our black and indigenous children to juvenile detention centers in disproportionate numbers is upholding a neurotypical norm which takes, as neurotypicality always does, whiteness as the standard.

To engage with neurodiversity is to speak up about the extraordinary silence around neurotypicality and to acknowledge that we do not question ourselves enough as regards what kinds of bodies are welcomed and supported in education, and in social life more broadly. It is still far too rare that we discuss neurotypicality as that which frames our ways of knowing, of presenting ourselves, of being bodies in the world.

Source: Histories of Violence: Neurodiversity and the Policing of the Norm – Los Angeles Review of Books

“We’re advancing inclusive design now in Tech — which means that everyone’s individual identity and/or state will compete with each others’. Working collaboratively needs to become the norm.”

Source: John Maeda’s #DesignInTech


We Exist As Friction

I highly recommend Liz Jackson’s episode of UX Cake, Changing the Disability Design Narrative, to all designers, tech workers, and educators.

Selected quotes:

…how do we insert somebody with a disability studies background into a design space so they can start asking the hard questions and the right questions so that we can get past this — this frame of mind that only thinks of disability in terms of just accessibility?

We exist as friction. The work that I do; it’s wildly painful.

People are creating interventions to get around actually having to talk to us.

And we burst that bubble.

But the thing is, is when you look at empathy, you realize that — that like other sort of charitable approaches, it’s actually caused just as many problems as the solutions that it’s trying to sort of create.

And so, if you boil it down and look at it step-by-step, you know, the first step is, is cultivating empathy. But to a disabled person, it can feel a little less like empathy and a little bit more like designers are coming in, they’re speaking with us, they’re observing us, they’re taking our life hack welcomes right? Our ingenuity, and then they’re going to sell it back to us as inspirational do good, right? Without ever giving us credit.

Source: Changing the Disability Design Narrative – UX Cake Podcast

Yes! We need disability studies folks in every school and company. We need folks who speak and live the social model of disability on our teams.

I’m disabled and neurodivergent with two disabled and neurodivergent kids. “We exist as friction.” I let forth a “hell yeah” when I heard those words. We exist as friction, and we’re constantly educating others on and hacking our way around structural friction, to the betterment of all.

disabled people, we are the original life hackers, right? Our innovative solutions have changed the world, right? Like, we created the Internet, we created the bicycle, we created the iPhone touch screen, we created audio books and curb cuts. And, you know, just item after item. And, you know, I think that it just demonstrates the value of really existing on the margins.

It’s tiresome work. We could use some help from abled and neurotypical allies working with us and alongside us instead of for us. Develop the lens.

…who is capable of developing this lens? I don’t think as a society we’re there yet, right? Like, we don’t always — we’re not so eager to have our bubble burst. Especially with one of the few things that sort of traditionally makes us feel good about ourselves which is what disabled people call inspiration porn, right?

Where the objectification of our body is used to inspire other people, right? Disabled people make everybody else in society feel better about themselves. And I’m taking that away. Right? And that’s not fun.

Develop the lens by changing our framing from deficit ideology to structural ideology.

Design is tested at the edges. Invite friction into our companies, schools, and teams. We’ll all be better off for it.

Equity Literacy in Diversity and Inclusion Statements

Our diversity and inclusion statements need to get structural, get social, and get equity literate. Use them to directly challenge the meritocracy myths, deficit ideologies, and politics of resentment that are toxic to culture, teams, and collaboration.

I evaluate D&I statements by the extent to which they acknowledge and represent these ideas:

The Direct Confrontation Principle: There is no path to equity that does not involve a direct confrontation with inequity. There is no path to racial equity that does not involve a direct confrontation with interpersonal, institutional, and structural racism. “Equity” approaches that fail to directly confront inequity play a significant role in sustaining inequity.

The “Poverty of Culture” Principle: Inequities are primarily power and privilege problems, not primarily cultural problems. Equity requires power and privilege solutions, not just cultural solutions. Frameworks that attend to diversity purely in vague cultural terms, like the “culture of poverty,” are no threat to inequity.

The Prioritization Principle: Each policy and practice decision should be examined through the question, “How will this impact the most marginalized members of our community?” Equity is about prioritizing their interests.

The “Fix Injustice, Not Kids” Principle: Educational outcome disparities are not the result of deficiencies in marginalized communities’ cultures, mindsets, or grittiness, but rather of inequities. Equity initiatives focus, not on fixing marginalized people, but on fixing the conditions that marginalize people.

Source: Basic Principles for Equity Literacy

With this in mind, my purpose is to argue that when it comes to issues surrounding poverty and economic justice the preparation of teachers must be first and foremost an ideological endeavour, focused on adjusting fundamental understandings not only about educational outcome disparities but also about poverty itself. I will argue that it is only through the cultivation of what I call a structural ideology of poverty and economic justice that teachers become equity literate (Gorski 2013), capable of imagining the sorts of solutions that pose a genuine threat to the existence of class inequity in their classrooms and schools.

Source: Poverty and the ideological imperative: a call to unhook from deficit and grit ideology and to strive for structural ideology in teacher education