Letter to My Representatives on AHCA and Medicaid #2

In the neurodiversity and disability communities, we are sharing stories of how the ACA and Medicaid have helped us and saved us. We’re sharing stories of the dark days before the ACA. The AHCA will return us to those dark days. The ACA, though flawed, works. Medicaid works. Lives depend on them. Improve them. Give them more funding.

Note that there are no stories of how the ACA has hurt people. Sure, premiums could be lower and choice could be greater, especially in states that refused the Medicaid expansion. So fix that. Make a good faith effort to improve policy that has helped so many. Listen to the disability communities. They know our healthcare systems better than anyone. We are full time case workers for ourselves and our families. We know these systems.

The AHCA is theft. It is a transfer of wealth from the most vulnerable to the least. It is cronyism and kleptocracy drafted in a secretive manner defiant of all norms. That the GOP is going forth with it despite its massive unpopularity suggests confidence in the voter suppression that has disenfranchised so many.

What is the future for my neurodivergent, disabled kids in a structurally ableist society that has been stripped of resources by kleptocrats and dominionists, by oligarchs, autocrats and wild notions of providentialism? This dread alliance has declared war on public education. It has declared war on healthcare. It has declared war on IDEA and the ADA. It is intent on dismantling education and our safety nets. And then what?

I don’t feel safe in this post-fact country led by crooks and haters who have seized the levers of power through racialized social control and voter suppression. No marginalized person feels safe right now. The GOP has aspirations of one party rule, and that party is actively intolerant of diversity, inclusion, and a secular society that works for the benefit of all.

My family keeps a copy of historian Timothy Snyder’s book “On Tyranny: Twenty Lessons from the Twentieth Century” at hand. These lessons are important civics that we should learn for ourselves and teach our kids. They are necessary literacy all too applicable to these times of cultish compliance and burgeoning autocracy and one party rule. I suggest thumbing through this slim, accessible volume and facing the lessons therein.

Letter to My Representatives on AHCA and Medicaid #1

Please do not cut Medicaid. Medicaid is a lifeline for neurodivergent and disabled families. Mediciad funds community-based supports that keep us in our homes and out of abusive institutions that fail the “midnight burrito test” (if you can’t get up at midnight to microwave a burrito, you are not free).

Medicaid also supports special education. Special education in Texas has many problems, as documented by the Houston Chronicle in their “Denied” series. My neurodivergent kids with developmental disabilities have IEPs. Their education relies, in part, on Medicaid funding. It relies also on respect for IDEA and the ADA, which are being threatened along with Medicaid. Is neurodivergence a pre-existing condition that precludes an education?

Life is hard enough for families with disabilities. The AHCA and the President’s budget are life threatening and future limiting. My family is bracing for the possibility of a society without any support or safety net for our most vulnerable kids. We’re standing at the edge of a cliff, and the Republican Party seems eager to push us over.

Neurodiversity and disability communities oppose the AHCA. Every special education family in our peer groups oppose it. These policies were conceived and iterated behind closed doors without our input or representation. They seem eugenicist in intent. They will certainly be eugenicist in outcome.

Selected Tweets, May 2017: Diversity, Inclusion, Neurodiversity, Disability, Evangelicalism, Tech Ethics, Education, Voter Suppression, Addiction, Drug War, Bodily Autonomy

I’m experimenting with using moments to curate favorite tweets in several categories. I review them at the end of the month to reflect and suss the zeitgeist.

Diversity, Inclusion, and the Social Model for Minds and Bodies

Evangelicalism, Fundamentalism, and Christofascism

Humane Tech and Tech Ethics

Education and Ed-Tech

Voter Suppression

Addiction, Dependence, Rehab, and Harm Reduction

Drug War

Bodily Autonomy

#BodilyAutonomy