I’ve made quite a study of ABA and PBS over the last couple of years. I know a good number of ABA and PBS practitioners. I have seen the methods. I have the training materials. I have the books. I have seen the course content. I’m a professional, working in autism, and autistic. I train the Royal College of Psychiarists, alongside my fellow autistic professionals. We train Psychologists, Psychotherapists, schools, colleges, organisations across the country. We haven’t just ‘fallen off the back of a turnip truck’, to use a phrase. We know what a good therapy should include, and what is a really bad idea.
I think I shall echo the words of the National Autism Project, in their report, “The Autism Dividend”:
“Positive Behavioural Support in the form of ‘active support’ may work for some children and families – but this approach is not suitable for everyone, and indeed is not without controversy”.
In fact, as far as anyone can tell, there has been no good long term independent research into the use of PBS and autism. We have no idea what the impact is of using this behaviour modification approach on autistic individuals in the long term. It is approved for use with learning disability, and has therefore been assumed OK for autism. But autism is not learning disability. Autism is different. Very different indeed. I’ve read so many examples of PBS assuming that a child has to be taught to socialise in non-autistic ways. Taught to socialise through every lunch time, every break time, every after-school event. If they can socialise just like they’re not autistic, they’re ‘accessing the community’, and that is the goal. “Indistinguishable from our peers”. Perhaps allowed a tiny flap or rock, if that’s not inconveniencing anyone else.
I would suggest that ABA and PBS needs some very thorough and continuing research. Because we are gambling with the lives of an awful lot of children. The suicide rates for autism are already stratospheric. I note the legal cases in the USA from some individuals who believe they were deeply damaged by some therapies. If we’re wrong, and we are in effect doing the same thing as the highly discredited and damaging ‘gay conversion therapy’…. we are setting an awful lot of children up to have serious consequences later in life. No matter how ‘positive’ the title of the product.
The book “introduces the concepts of workflow and workflow thinking as a way to describe, analyze, and share mediated approaches to writing and knowledge work.” I like their “workflow thinking” concept. I’ll work it into my post on Writing in Education and Plain Text Flow where I advocate for plain text and a workflow approach to writing in education.
From our participants’ practices we draw the concept of workflow thinking-the act of reading knowledge work as modular and intertwined with technologies. Workflow thinking allows our participants to break any given project into a series of shorter process steps-a perspective that is well in line with rhetoric and composition’s understanding of process and its typical pedagogical practices. Workflow thinking, however, foregrounds the mediated nature of that work. It looks at each task or component and asks a question of the writing technologies and available affordances within that component: “Through which technologies will I accomplish this task? Why? What does a change in technologies offer here?” For our participants, a shift in these practices might afford them mobility or the removal of drudgery or new ways of seeing a problem or new invention strategies. In each case, however, they are able to use this mediated and modular thinking to reevaluate when and how they approach knowledge work.
This book offers workflow thinking as a counterpoint to contemporary discussions of digital writing technologies-particularly in regards to the increasing prominence of institutional software. As more universities sign on to site licenses for platforms like Office 365 and Google Apps for Education, and as more students and faculty become comfortable with working within those applications, writers risk a “cementing” of practice-a means through which writing tasks begin and end in institutionally-sanctioned software because it is free or pre-installed or institutionally available or seen as a shared software vocabulary. A lens of workflow thinking pushes against this, instead asking “what are the component pieces of this work?” and “how is this mediated?” and “what might a shift in mediation or technology afford me in completing this?” In short, we see workflow thinking as a way to reclaim agency and to push against institutionally-purchased software defaults. This perspective has origins in early humanities computing (particularly in 1980s research on word processors), as we will more fully discuss later in this chapter.
I also like their concept of friction, particularly purposeful friction.
In offering the concept of workflow thinking, we diverge from the business & systems-focused concept of the workflow (one that is often used by our participants) in suggesting that workflow thinking should not privilege efficiency above all else. Just as there are compelling outcomes to automating a mundane computing task via a program or script, there are also compelling outcomes to purposefully introducing constraints to a modular workflow component—for example, writing a draft in crayon (Wysocki, 2004)—and purposefully introducing friction into process.
These writers are constantly reexamining their processes, looking at the potential of mediating technologies, and searching for friction-places where they think there’s a better way to accomplish a task, where they find unnecessary steps in a process, or where they describe software as getting in their way. Workflows allow them to search for and eliminate friction, better matching writing tools to the writer’s affective preferences and creating new ways of seeing and doing knowledge work.
The concept of friction offers one possible explanation for Word’s ascent and the general disappearance of word processing research. Friction is most noticeable when first adopting a new piece of software, as each task seems to take longer than it should. Once software is familiar and process is routinized, friction fades to the background. And once it seems normal, a specific use case isn’t frictional-it’s simply the way the software works. Over time, that friction melds into a user’s everyday interaction with the computer. (This is one way in which our participants deviate from typical computing patterns; they seek out and read for moments of friction.)
Word’s familiarity and ubiquity means that many writers can use it without problem; any perceived friction recedes to the background as a part of a typical use case. This familiarity serves a purpose, “as people prefer their technologies transparent: they do not like to think about the features of their word processors any more than they like to think about shifting gears in an automobile, and they prefer to look through a given technology to the task at hand” (Haas, 1996, p. 25). The narrowing of the word processor market facilitated this perspective-moving (to follow Haas’s analogy) writing software from a manual to automatic transmission. Today, many writers open Word, step on the gas, and go. Moving out of this mindset, as Haas argues, “entail[s] looking at, rather than through, the literacy technologies we use every day. This will be difficult, and indeed not always practical. In the conduct of most work it is important to be able to treat technology transparently; after all, we have classes to teach, books to write, and children to raise” (p. 23). Said simply: To study friction is to reintroduce friction into writing. Word became transparent and useful, and the word processor lost its luster as an object of inquiry.
For participants in the workflow affinity space, searching for friction means identifying and eliminating moments when software gets in the way. They might recommend that writers step back from familiar software and consider how friction has become normalized in day-to-day use cases.
Word will appear to be a frictionless technology until Word is no longer a readily available tool. Then, when Word files aren’t easy to open, friction will reappear. By stepping away from the familiar and searching for potential friction points, however, a writer can better understand how particular tools or formats shape and structure their work.
There is also a way to see friction as generative by purposefully introducing it to one’s process through difficult or troublesome technologies. This approach to friction departs from the efficiency-minded priorities of the writers we profile in this book, but it aligns well with the creative and inventive priorities of many writing pedagogies. This might look something like Anne Wysocki’s (2004) writing assignment that suggests instructors “give students a short (1-2 page) writing assignment-and then ask them to turn in the assignment written in crayon (any color or colors) on any paper” (p. 27). Crayons, in an academic context, are pure friction; they are difficult to work with, they smear, they can look messy or unprofessional, and they subvert expectations. However, the friction imposed by crayons might help a writer better understand mediation and see their work in a new way. This friction can be inventive and productive, and it aligns with Marcus’s invisible writing exercise: Swapping monitors won’t help a writer produce a polished draft, but it might help them generate ideas or see their work in new ways. It is purposeful friction.
In the introduction, the authors ask a question I’ve wondered about regarding the continued dominance of page-based word processing in education while so many hackers, writers, scientists, and screenwriters are using Markdown, a now 14 year old technology.
At the 2013 Computers & Writing conference, we (Derek & Tim) started talking about the broad Markdown affinity space: Podcasts, blogs, self-published books, and social media conversations. We were particularly interested in the absence of these conversations within our field. How could a nearly ten-years-old writing technology continue to grow in professional and enthusiast spaces but also be largely absent among those who teach and research writing?
Mine is a tiny empire of foam, articulation, and assistive devices. Scheurmann’s kyphosis, lumbar spondylolisthesis, fibromyalgia, wildfire muscle cramps, muscle-boiling fasciculations, and peripheral neuropathy are constant companions. As are sensory overwhelm and the effects of autistic burnout.
In this guide are the things I use to conserve spoons, stay below sensory thresholds, and get through each day. These are tested in the field of my disabled and neurodivergent life. While attempting brevity, I’ll describe how each fits into my flow.
I link to Wirecutter reviews for many of these items. They show their research and list alternatives. Disclosure: Some of the links below are Wirecutter Amazon affiliate links. Wirecutter is a New York Times company.
Foam Ear Plugs
Vibes Ear Plugs
Bluetooth Sleep Masks
Sunglasses and Light-reactive Glasses
Pillows, Bedding and Bolsters
Shredded Foam Pillows
Heating Pads and Blankets
Rolling Floor Stands
Gooseneck Clip Phone Holders
Neck/Lazy Bracket Phone Holders
Portable Moon Chairs
Folding Walking Canes
The Toes Knows
Motion Control Shoes
Yankz and Lock Laces
Zipper Hoodies with Pockets
Thai Fisherman Pants
Tracking and Finding
Cutting and Opening
Utility Knives and Scissors
Music and The Golden Age of Television
The Future is Accessible, Accessibility Matters, and Ableism is Awful Apparel
I keep my sensory kit in an Arcteryx Maka 1 belly bag (a waist/fanny/lumbar pack worn front). My belly bag is always with me.
Anything I carry around this much can’t be on my back. It must be curated down to the things that are worth their mass and worn below the aching suspension of my pained back. I’m stooped enough. Waist packs worn front hit a sweet spot of retrievability, gravity budgeting, and pain management. I can bear the weight, and when I unzip the compartments, everything therein is first order retrievable.
Foam ear plugs can amplify my tinnitus. Even when they turn up the ringing, I keep them in because I sleep better through tinnitus than ambient sound.
Vibes don’t block as much sound as foam ear plugs, but their “breathability” amplifies my tinnitus less. Lately, I’ve been using the Vibes as my go to sleeping ear plug with good results. In noisier environments where I want isolation, I use the foam.
The stems serve as handles, making extraction much easier than with foam.
The snap case that comes with the Vibes is large enough to hold both the pair of Vibes and a pair of foam plugs. I like the size and affirmative closure of the snap case, though it requires two hands to open. It fits easily in the smaller compartment of my belly bag.
Nose-cancelling headphones are also part of my go-everywhere sensory kit. Since they don’t fit in the belly bag, they are usually to be found around my neck. I feel better knowing they’re there.
They’re expensive. To get their full benefits, you need an expensive iPhone. I wish this accessibility tech was more affordable, because AirPodsmakemefeel augmented, especially with the arrival of Siri Shortcuts. AirPods provide convenient sensory management and a voice interface to my cognitive net. I leave these in for hours at a time: playing music, setting timers and alarms, creating tasks in Things, and accessing the checklists that order my life. When not in my ears, they stow comfortably in the belly bag in the same pocket as the Vibes snap case (and some other stuff).
I forget I have these hanging from my ears. “Hanging” is the key to comfort. When I first got them, I was “inserting”. Ear burn came on quickly because their hard plastic was pressing against the ridge poking out along the top of my ear canal. Once I let go of the “you gotta push ‘em in there to not lose ‘em” anxiety and started hanging instead of inserting, comfort came.
Two taps to pause. Remove a bud to pause. Instant pairing. Siri Shortcuts. Disability means getting used to bad flow, flow not designed for you, flow not accessible to you. This is good flow that removes some thoughtlessness and frustration from my world.
I once heard a blind person say, “With my cane, my brain, and my trusty iPhone, I can go anywhere.” I agree with the statement completely, but it’s time to update that statement to the 2018 version:
Give me a set of AirPods to go with my iPhone, and I can go anywhere-and surreptitiously know a lot about my environment while doing so.
I’m light sensitive, so my go everywhere sensory kit also includes a sleep mask. I like ones with raised eye cups, such as the Wirecutter recommendedNidra Deep Rest. The Deep Rest rolls up compactly and fits comfortably in the large compartment of my belly bag right alongside my sunglasses.
Bluetooth Sleep Mask
Unlike the other parts of my sensory kit, I don’t carry this with me all the time. It’s usually on a bedside table, though I’ll loop it through the belt of my belly bag when I want to keep it with me, such as on a car trip.
I use the mask from Topointas recommended by Brett Terpstra. The padded nose bridge lifts the mask off the eyes. There’s not as much eyelash clearance as the Nidra Deep Rest, so your lashes might brush the mask when you blink. With eyes closed, I have the clearance I need to be comfortable.
The controls are placed on the left cheek. After laying on my left side for awhile, the pressure is noticeable, though I can still fall asleep.
The controls are certainly not the easiest to use without looking, but I got the hang of it. Since I put the mask on when I’m ready to fall asleep to a favorite playlist or to a white noise generator, I don’t interact with the controls much anyway.
These don’t provide the isolation of an over-ear or ear buds, but they do a good enough job to put me in the sensory space I want to be in.
This mask sleeps hotter than the Nidra Deep Rest.
Sunglasses and Light-reactive Glasses
My bifocals have light-reactive, photochromic lenses that protect my light-sensitive eyes without having to swap into sunglasses whenever I walk outside.
Light-reactive lenses react to UV. Car windows block UV. I always keep a pair of dedicated sunglasses in my belly bag so I can use them when in the car or indoors.
I always have a hat with me. They are an important part of my sensory management. Beanies are my go to because they’re light, packable, cover my ears, and provide gentle, even pressure to my scalp.
My lightest weight beanie is a Smartwool PhD Ultra Light. It stuffs down small enough to keep in my belly bag at all times. This hat can actually cool me down when out in the sun. It blocks some rays while wicking sweat. Sometimes, I put it on and immediately feel that evaporative cooling sensation.
It doesn’t go down over the ears as much as I’d like, though. I find myself trying to tug it down. Smartwool, a slightly longer PhD Ultra Light would suit me fine.
My go to beanie is the Smartwool PhD Light. It has the full ear coverage I like. It’s notably heavier than the Ultra Light since it is two layers instead of one, but it still packs down small enough to fit in the belly bag.
Smartwool’s The Lid comes out when I need a little more warmth. It’s too big to pack into the belly bag, so I loop it through the belt of the bag.
I like the fit and scalp pressure of Smartwool’s beanies.
Beads are stimmy goodness. I make my own stim jewelry from beads and beading wire. I keep a stim loop attached to the belly bag. I put a finger’s width of slack in the wire of the loop so that I can spin and slide the beads. It can be used one-handed while attached to the bag or can be removed for two-handed play.
I use a length of light shock cord as a zipper pull. The stretch is stimmy goodness. I ran the cord through a piece of rubbery tubing. I enjoy the texture and the tug of this simple stim.
Stimtastic is affordable stim toys, chewable jewelry and fidgets for autistic adults and teens as well as individuals with SPD, ADHD/ADD, dyspraxia . . . everyone who stims! Run by an autistic person, Stimtastic celebrates stimming as a natural part of our lives.
Any part of me that touches the world is gonna ache soon enough. Pillows improve my relationship with gravity, which pulls like a sickness.
Shredded Foam Pillows
I’ve tried various foam pillows over the years, but their heavy density and warm nature didn’t work for me. Shredded foam pillows fix these problems. Though heavier than down and poly fill, they’re not as heavy as the solid foam of old. The extra weight vs. the lighter fills gets you some moldability and conformability. I mold out space to accommodate my AirPods when side-sleeping. I can even mold out enough space for my big over-ear cans, though that’s still not quite comfortable.
This pillow is big and rather heavy. I invert mine to fluff it every few days. The size makes the process a bit of a wrestle.
This pillow doesn’t provide head support (at least not at my 5’8” height), so I supplement with the shredded foam stuffed sham mentioned earlier. I made it the thickness I need to fill the gap between my head and the wall. Pillows that are stuffed even just a little bit too thick pitch my head forward uncomfortably.
Of the travel/neck pillows I’ve tried, only the Travelrest Ultimate Memory Foam Travel Pillow suits my needs because it removes the thickness at the back of the pillow so that my head doesn’t pitch forward. Pillows that don’t reduce thickness behind the head are non-starters.
Like so many travel pillows, the Travelrest presses against my AirPods and over-ear cans. Someday, I’ll find a pillow that removes the rear thickness, contours around headphones, and still supports my head when it’s lolling to the side.
I use neck pillows in the car and also, at times, while working from bed. There are days when my neck gets tired of keeping my head on.
The Company Store Down-Free Fill Body Pillow is my cuddly alignment companion. I’m a dedicated side sleeper even though becoming a back sleeper would ease some pain. A full length body pillow reduces distracting shoulder and arm pressure and aligns my hips and knees.
Side-sleepers may find it comfortable to hug a body pillow, reducing pressure on the bottom shoulder and arm. It can also be comfortable to tuck the pillow between the knees, preventing the pelvis from tilting forward or backward: “If you sleep on your side without a pillow between your legs, the muscle fibers can get overstretched,” Ryan told us. Keeping the ankles separated and parallel during the night can also be comfortable, Ryan said, especially for people who experience swelling.
A 72”, this pillow is longer than I am tall. I like that. It’s a feature The Company Store pillow has over others, as noted in the WireCutter review. I considered going with a shredded foam body pillow since it works for me in other applications, but decided to go with a lighter fill given the long length. I don’t regret it. The TCS body pillow has the right amount of loft, poof, and rebound.
The two coccyx pillows I see most often recommended are the ComfiLife and the Aylio.
Heating Pads and Blankets
I have too much kyphosis (curvature) in my spine. The result is constantly aching back muscles stretched like cables supporting a poorly designed suspension bridge. I pretty much live on a heating pad to ease the deep, abiding ache. Check out the Wirecutter recommendations for heating pads and electric blankets. I use their top recommendation, the PureRelief XL – King Size Heating Pad, daily.
I can’t hold a phone, tablet, or e-reader for long without hand, wrist, elbow, shoulder, and neck pain. I can’t use a laptop unless it’s positioned just right. So, I articulate all the things. I spend a lot of time in the supine; articulated tablet, laptop, and e-reader holders are a must.
Rolling Floor Stands
We have three LEVO Deluxe iPad Floor Stands that have survived years of continuous abuse. They are tough and stable. The kids use the arms as stim toys for fidgeting feet and even ride them around the house like scooters. These stands have held up through all of our indelicate attentions.
I glued large rare earth magnets (salvaged from some aquarium equipment) to their faces. I like magnetic phone attachment.
I roll these up next to the bed or couch whenever I’m spending time on my phone or e-reader. Not using them is to invite pain.
I clamp an Ergotron LX Tall Pole LCD Arm to my bed frame. It is fitted with an extension arm and a laptop tray. This provides the articulation I need to find a comfortable repose whether watching TV or sitting up against my reading pillow and typing. The tall pole provides mattress clearance, but if you have a super-thick mattress you might have to get creative with clamping.
I love this arm. It hovers my laptop over me in bed, making work possible. I’m glad I got the extra extension arm. It adds needed height to clear me in bed and extends its range to the width of the bed. I strap a UE ROLL 2 to the extension arm. This puts it at the prefect height and orientation to send sound up along my reclined body.
Gooseneck phone holders aren’t so great for actually using your phone while mounted. They jiggle too much. However, when watching a movie in a hotel room where I don’t have my floor stand, they save a lot of pain. I clip one to my bedside table and throw it in a tote bag when I travel.
As with the floor stands, I glued a magnet to my holder. I got a clamp style holder, but the jaws are quite deep enough for my iPhone 7+ in a wallet case stuffed with cards. Actually, I glued a magnet to a small metal rolling tray that happens to fit the jaws of my holder. Holder clamps tray, magnet on tray hold phone. Magnetic versions aren’t as common, but I should try one.
Neck/Lazy Bracket Phone Holders
I’m always looking for ways to save pain while using my phone. Often, neither focal range on my bifocals is comfortable for reading because neck and shoulder pain limit the positions in which I can hold a phone. In such moments, I take off my glasses and put my phone on a GoWith [Magnetic Tablet & Cell Phone Holder worn around my neck. This way, I can position my phone exactly where I need it to accommodate both my eyes and my neck.
I usually use this when sitting outside reading. I’ll sometimes walk around with it on while running through household checklists.
If you love your spoonie to the tune of 800 – 2000 bucks, I can recommend the Steelcase Leap, the Steelcase Think, and Soma Ergonomics chairs. We’ve had all three around the house for several years, and they are well-built survivors. The Leap is approaching twenty years old and still holding up comfortably.
Moon/saucer chairs certainly aren’t for everyone, but I take a big CORE padded moon chair or KingCamp Sofa moon chair with me to outdoor events. I use them at home too for lounging outside. I like the room big saucers provide, and they support my curved back more comfortably than upright chairs.
I couldn’t cook or wash dishes without standing mats in the kitchen. These extend my functional time and reduce painful bouts of sciatica, paresthesia, and fasciculations. I use the Imprint flat matsuggested here.
I use a few mobility devices to extend my range and stay below thresholds.
Folding Walking Canes
My Switch Sticks folding walking cane has been a reliable companion. Adjustable and durable, this fits and hasn’t let me down. They come in many colors and patterns and are tote bag stuffable.
With a Flipstick, I always have a seat with me. I put a padded bicycle seat on mine and cut a hole through it to provide access to the button that locks and unlocks the seat.
When I’m waiting in a chair in a doctor’s office, I lean forward and support my head on the Flipstick’s seat. My kyphosis pitches me forward. With the Flipstick, I can go with my tendency to lean and be supported. I use it in this mode more often than I use it as a seat.
This seat has saved me when caught in unexpectedly long queues without a rollator or wheelchair. It’s not exactly comfortable, but when my legs are ready to buckle, I’m glad I have it. When sitting on this, form a tripod with your legs and the stick.
There is a little slop in the seat mechanism and the collapsible sections. The Switch Stick has a tighter fit and doesn’t have a rattly flip seat. If you can’t stand any rattle or slop in your collapsible canes, the Flipstick might be a bad fit.
My Drive Medical rollator has also been reliable. It assists me on longer bouts of walking and avoids the often fruitless search for seating. I sometimes wish I had a side-folding rollator for navigating narrow doorways, but those are more expensive, and the seat hinges down the middle, which bothers some.
I like to sit outside, even as the temperature drops. Baffin Base Camp booties are sleeping bags for my feet that keep my feet warm through a full winter season of porch sitting. They’re great in the house too.
Custom orthotics are one of the best investments I ever made. I’m a flat-footed over pronator who’s had a lifetime of grief with my feet, including having my feet forcibly shaped by hard plastic orthotics as a kid.
The orthotics of today aren’t those wretched things I had as a kid. For too long, that childhood experience prevented me from giving orthotics another go. I don’t walk more than 20 steps without the 3/4 length orthotics I have now. Without them, even a brief walk of just one minute induces foot pain.
My podiatrist used a plaster cast method, and I’ve been very happy with the results. A portable cast of your foot transforms every shoe.
If you want to change the life of someone with foot issues, spring $500 for custom orthotics.
Motion Control Shoes
My go to motion control shoe is the Brooks Beast. These are expensive shoes, so expensive that I wear them years longer than I should. Funding fresh motion control kicks for the over pronator in your life is a nice move.
Yankz and Lock Laces
Our dyspraxic family uses Lock Laces to avoid knot tying. Yankz is a similar brand. I’ve never owned Yankz, but I see both them and Lock Laces recommended in the #ActuallyAutistic community. The main difference seems to be the tensioning clip in the Yankz. I don’t need that part.
There isn’t much selection in accessible shoes, making Nike’s Flyease all the more appreciated. Every shoe company should have an accessibility line. We buy Flyease.
Clothing and texture preferences are very personal. Here’s what’s compatible with me and my sensory needs.
Zipper Hoodies with Pockets
I like soft cotton and micro fleece hoodies with zipper fronts, ample hoods, and plenty of pockets. I live in hoodies. I recede into their comforts. They provide sensory insulation.
I have limited shoulder flexibility and cramp readily when trying to shimmy out of long sleeve pullovers. All of my outerwear has a means of escape, preferably a YKK zipper.
Thai Fisherman Pants
Inexpensive, comfortable, and capable of being both your fat pants and your skinny pants, Thai Fisherman Pants are what I wear pretty much all the time. I get mine from Amonchai.
Thai fisherman pants are secured with a knot. Knot tying isn’t accessible to everyone. I still have enough hand dexterity to tie bow knots, so I haven’t had to work around the knot requirements of fisherman pants.
BTW, if you tie shoelaces using the bunny ear method, you might be tying Granny Knots instead of more secure Reef Knots. I did this for a long time before habituating myself to switch my starting knot from left over right to right over left.
Of the three common knotting techniques, the Two Loop Shoelace Knot (or “Bunny Ears” method) is probably the one that is most often tied incorrectly. The technique consists of one knot tied with loose ends followed by a second knot tied with loops. People naturally tie both stages exactly the same way, resulting in a “Granny Knot”. This has given it a bad reputation as an inferior knot – whereas it’s actually quite secure if tied correctly.
…if you currently tie your starting knot: “Left end over Right end & through”, simply change it to: “Right end over Left end & through” – or vice versa.
Medications and chronic pain can increase distractibility and impact cognition. I attach Tile trackers to keys, canes, headphones, purses, and bags. I attach one to the key leash of the belly bag. Searching for necessary coping tools while grimacing with pain is frustrating and dispiriting. Tile trackers provide a comforting cognitive net.
Double pressing the button on the Tiles rings your phone. With a Tile on my belly bag (as well as on my headphones and canes), I’m always able to summon my phone from its hiding places in the depths of couches and bedding.
They have to be replaced each year, which gets expensive. Tile recently released a Pro Tile with a replaceable battery. Next time I have to replace one, I’ll try a Pro.
Tiles are too big to put on eyeglasses. Luckily, there’s a superior eyeglass locating technology: eyeglass chains. Put chains on your glasses and never wonder where they’re at again.
As I became more presbyopic, I found myself losing track of my glasses because I’d take them off to read and see up close. Putting my eyeglasses on a chain has saved me a lot of frustrated searching.
A good utility knife and a good pair of scissors assist package opening chores and household cutting. In our dyspraxic, repetitive-strain-wracked household, we cut instead of pull, rip, and tear. The Wirecutter recommendations for utility knife and kitchen scissors have served us well.
I picked the Wellmax WM99024S Grocery Utility Shopping Cart from the competition based on Amazon reviews. I haven’t had cause to regret the choice. When driving to out of town hospitals and staying in hotels, the cart handles schlepping our coping array to and from the car. At home, we use it for bringing in groceries from the car.
Music helps manage sensory overwhelm and is an unguent for souls. Spotify and Apple Music subscriptions cover every mood.
Here, enjoy a minimalist chill. The repetitive structures of minimalist compositions are part of my sensory management.
The Future is Accessible, Accessibility Matters, and Ableism is Awful Apparel
Support disabled people, and spread the message of accessibility. Accessibility Matters and The Future is Accessible apparel are not always available (the campaigns run for limited time windows), but grab something for the spoonie in your life when they are. If the campaigns currently aren’t open, hit the “I Would Buy This!” button to signal interest in the next campaign.
Masturbation reminds you that your body is about more than pain. Get some toys. The Magic Wand is a good general purpose massager and sensory stimulator. Again, I’ll rely on Wirecutter recommendations since they show their work and offer alternatives.
A #ChronicHolidays guide doesn’t feel complete without some chronic. Medical marijuana is a life saver for many. It’s an ally to disability and neurodivergence. It eases chronic pain, aids sleep, reduces sensory overwhelm, and heads off overwhelm and PTSD-induced meltdown. I prefer vaporizing hash oil concentrates, especially at bed time, but combusting a joint while amidst nature appeals to a Promethean and free wildling part of my nature. Here are suggestions for grinders, rolling supplies, dry herb vaporizers, and concentrate vaporizers.
Dry Herb Grinder
I currently use a large Space Case Grinder Sifter. Larger diameter cases are easier on my hands and wrists. The threads on this case are fine and need to be kept clean. 99% isopropyl helps with that and all medical marijuana related cleaning needs. I’d prefer something with coarser, less-cloggable threads, but as long as I keep the threads clean I can get by. The Wirecutter has grinder recommendations, but I haven’t tried any of them.
Dry Herb Vaporizers
I’ve tried several dry herb vaporizers over the years. Most did not stay in my rotation long. The AirVape X bucks that trend. It has a minimal air path, which means less cleaning. The large rim funnels down into the oven, which means less spilling of precious medicine.
I use RAW organic hemp rolling papers and tips. I always roll with rolling tips (also called crutches or roaches). They make hand rolling easier and provide a more comfortable burn as you get to the end of your number. You won’t have incendiary hippie grenades hitting the back of your throat if you z-fold your rolling tip. If you don’t have any rolling supplies, kits that include a rolling tray, rolling machine, rolling paper, rolling tips, and a doob tube are convenient.
Cannabis is a botanical. That’s means the possibility of allergies, especially when combusting dried flower. If you’re sensitive to botanicals, concentrates like butane hash oil (BHO) will better suit you. BHO uses butane as a solvent. Most of it is purged off, but if you’re sensitive to butane try a solvent-less concentrate like rosin.
I prefer inhaling my meds. Vapor is the most bio-available delivery method. Inhaled vapor gives instant relief and dosing feedback since it goes straight to the brain.
For concentrate vapes, I’ve had good luck with Linx products. I’m currently using the Linx Ares Honey Straw. It’s straw design means there are more surfaces in the air path, which means more cleaning. I clean it with an alcohol wipe every time I recharge and haven’t had any problems with it so far. When kept clean, straw and nectar collector designs provide the best flavor and cleanest hits. If you enjoy terpenes and revel in the taste of living green, try a straw design. With straws, you can dab straight from wax paper and silicone or glass containers. They’re not as discrete or handy for vaping on-the-go as pens though. The setup I like is a pen for continuous micro-dosing during the day and a straw or e-rig for heavier dosing at night.
I’ve used and enjoyed the Dr. Dabber Aurora. The magnetic sections are wrist friendly, but I found that the mouthpiece would come loose in my pocket. I fixed that with a piece of gaffer tape. Dr. Dabber has responsive customer service and stood by their product when I broke the ceramic pin on my Boost e-Rig.
Something to keep in mind with concentrate vaporizers is that you will have to regularly replace the atomizers (or heating tips for straw style devices). They get gunked up with resin over time and must be replaced. Factor the price of atomizers/tips and 99% isopropyl alcohol into the total ownership cost.
Here’s a survey of popular vape pens.
With all of these devices, you have to keep them clean, clean, clean. Always have 99% isopropyl handy. Amazon offers bottles by the case.
Turn that silicone water pipe into a dab rig with a quartz banger. I’ve used domed and domeless nails of all sorts. My preference is the quartz banger. They’re easy to use and provide a clean hit.
A water pipe with a quartz banger is an enjoyable way to apply a bed time dose.
A Good Torch
I’ve gone through a lot of torches. The only one to last more than 6 months is the Blazer Big Shot. Mine still strikes after almost 6 years of regular use.
There are a lot of hemp-derived CBD (cannabidiol) products on the market right now. They are currently legal in all 50 states in the US. There are a lot of rip offs out there, so watch out.
CBD is a cozy blanket of calm. I don’t find the hemp-derived CBD concentrates to be as effective as marijuana derived concentrates, but they still help.
In my experience, CBD works better in concert with THC. 1:1 CBD:THC products suit me nicely. If you don’t have access to medical marijuana derived CBD, the hemp stuff will certainly suffice. CBD can help reduce dependence on opioids. If you experience opioid constipation, CBD could be a life changer.
CBD concentrates comes in many forms. Crystals are flexible and multi-use. You can sprinkle them on food, swirl them in drinks, cook with them, and even dab them with dab rigs, vapes, and straws.
Vape cartridge’s screw onto any vape pen with 510 threads. Cartridges are great for micro-dosing throughout the day.
I’m still auditioning hemp-derived CBD makers. Here in the Austin Texas area we have Ziggy’s Naturals.
Medical Marijuana Accessibility
It’s rare that I see reviews address the accessibility of devices. Every vaporizer I’ve used requires 5 quick button clicks to turn them on and off. This interaction is not so accessible. Grinders often have fine threads that are difficult to line up and clog quickly. Companies need to be more attentive to disability. I long for someone to take disability and accessibility seriously in their design, marketing, packaging, and customer support. Cannabis is medicine, after all.