We Exist As Friction

I highly recommend Liz Jackson’s episode of UX Cake, Changing the Disability Design Narrative, to all designers, tech workers, and educators.

Selected quotes:

…how do we insert somebody with a disability studies background into a design space so they can start asking the hard questions and the right questions so that we can get past this — this frame of mind that only thinks of disability in terms of just accessibility?

We exist as friction. The work that I do; it’s wildly painful.

People are creating interventions to get around actually having to talk to us.

And we burst that bubble.

But the thing is, is when you look at empathy, you realize that — that like other sort of charitable approaches, it’s actually caused just as many problems as the solutions that it’s trying to sort of create.

And so, if you boil it down and look at it step-by-step, you know, the first step is, is cultivating empathy. But to a disabled person, it can feel a little less like empathy and a little bit more like designers are coming in, they’re speaking with us, they’re observing us, they’re taking our life hack welcomes right? Our ingenuity, and then they’re going to sell it back to us as inspirational do good, right? Without ever giving us credit.

Source: Changing the Disability Design Narrative – UX Cake Podcast

Yes! We need disability studies folks in every school and company. We need folks who speak and live the social model of disability on our teams.

I’m disabled and neurodivergent with two disabled and neurodivergent kids. “We exist as friction.” I let forth a “hell yeah” when I heard those words. We exist as friction, and we’re constantly educating others on and hacking our way around structural friction, to the betterment of all.

disabled people, we are the original life hackers, right? Our innovative solutions have changed the world, right? Like, we created the Internet, we created the bicycle, we created the iPhone touch screen, we created audio books and curb cuts. And, you know, just item after item. And, you know, I think that it just demonstrates the value of really existing on the margins.

It’s tiresome work. We could use some help from abled and neurotypical allies working with us and alongside us instead of for us. Develop the lens.

…who is capable of developing this lens? I don’t think as a society we’re there yet, right? Like, we don’t always — we’re not so eager to have our bubble burst. Especially with one of the few things that sort of traditionally makes us feel good about ourselves which is what disabled people call inspiration porn, right?

Where the objectification of our body is used to inspire other people, right? Disabled people make everybody else in society feel better about themselves. And I’m taking that away. Right? And that’s not fun.

Develop the lens by changing our framing from deficit ideology to structural ideology.

Design is tested at the edges. Invite friction into our companies, schools, and teams. We’ll all be better off for it.

A #ChronicHolidays Gift Guide for Chronic Illness, Chronic Pain, Sensory Management, and Stimming – 2018 Edition

Mine is a tiny empire of foam, articulation, and assistive devices. Scheurmann’s kyphosis, lumbar spondylolisthesis, fibromyalgia, wildfire muscle cramps, muscle-boiling fasciculations, and peripheral neuropathy are constant companions. As are sensory overwhelm and the effects of autistic burnout.

In this guide are the things I use to conserve spoons, stay below sensory thresholds, and get through each day. These are tested in the field of my disabled and neurodivergent life. While attempting brevity, I’ll describe how each fits into my flow.

I link to Wirecutter reviews for many of these items. They show their research and list alternatives. Disclosure: Some of the links below are Wirecutter Amazon affiliate links. Wirecutter is a New York Times company.


  • Sensory Kit
    • Foam Ear Plugs
    • Vibes Ear Plugs
    • Noise-cancelling Headphones
    • AirPods
    • Sleep Masks
    • Bluetooth Sleep Masks
    • Sunglasses and Light-reactive Glasses
    • Beanie Hats
    • Stim Toys
    • Communication Necklaces
  • Pillows, Bedding and Bolsters
    • Shredded Foam Pillows
    • Neck Pillows
    • Body Pillows
    • Seat Cushions
    • Heating Pads and Blankets
  • Articulation
    • Rolling Floor Stands
    • Monitor Arms
    • Gooseneck Clip Phone Holders
    • Neck/Lazy Bracket Phone Holders
  • Sitting
    • Task Chairs
    • Portable Moon Chairs
  • Standing
    • Standing Mats
  • Mobility
    • Folding Walking Canes
    • Flipsticks
    • Rollators
    • Wheelchair Upgrades
  • Hydration
    • Water Bottles
    • Travel Mugs
  • The Toes Knows
    • Cozy Slippers
    • Custom Orthotics
    • Motion Control Shoes
    • Yankz and Lock Laces
    • Accessible Shoes
  • Clothing
    • Zipper Hoodies with Pockets
    • Thai Fisherman Pants
  • Tracking and Finding
    • Tile Trackers
    • Eyeglass Chains
  • Cutting and Opening
    • Utility Knives and Scissors
  • Schlepping
    • Utility/Shopping Carts
  • Music and The Golden Age of Television
  • The Future is Accessible, Accessibility Matters, and Ableism is Awful Apparel
  • Sex Toys
  • Medical Cannabis
    • Dry Herb Grinders
    • Dry Herb Vaporizers
    • Rolling Papers and Tips
    • About Botanicals
    • Concentrate Vaporizers
    • Silicone Water Pipes
    • Quartz Bangers
    • A Good Torch
    • CBD
    • Medical Marijuana Accessibility

Sensory Kit

My sensory kit is always with me. It helps me manage sensory overwhelm and avoid meltdowns and burnout.

I keep my sensory kit in an Arcteryx Maka 1 belly bag (a waist/fanny/lumbar pack worn front). My belly bag is always with me.

Anything I carry around this much can’t be on my back. It must be curated down to the things that are worth their mass and worn below the aching suspension of my pained back. I’m stooped enough. Waist packs worn front hit a sweet spot of retrievability, gravity budgeting, and pain management. I can bear the weight, and when I unzip the compartments, everything therein is first order retrievable.

Foam Ear Plugs

I can’t sleep or endure noisy spaces without ear plugs. I take them everywhere. I’m currently using Wirecutter’s top recommendation, Mack’s Slim Fit Soft Foam Earplugs. Hearos ear plugs also work well for me.

Vibes Ear Plugs

Foam ear plugs can amplify my tinnitus. Even when they turn up the ringing, I keep them in because I sleep better through tinnitus than ambient sound.

Vibes don’t block as much sound as foam ear plugs, but their “breathability” amplifies my tinnitus less. Lately, I’ve been using the Vibes as my go to sleeping ear plug with good results. In noisier environments where I want isolation, I use the foam.

The stems serve as handles, making extraction much easier than with foam.

The snap case that comes with the Vibes is large enough to hold both the pair of Vibes and a pair of foam plugs. I like the size and affirmative closure of the snap case, though it requires two hands to open. It fits easily in the smaller compartment of my belly bag.

Noise-cancelling Headphones

Nose-cancelling headphones are also part of my go-everywhere sensory kit. Since they don’t fit in the belly bag, they are usually to be found around my neck. I feel better knowing they’re there.

I use the pricey Sennheiser Momentum 2.0 Wireless headphones that I received as a gift from work (thanks Automattic). For more affordable options, check out Wirecutter’s recommendations.

I don’t leave home without noise-cancelling headphones and my favorite sensory management playlist (Spotify, Apple Music).


They’re expensive. To get their full benefits, you need an expensive iPhone. I wish this accessibility tech was more affordable, because AirPods make me feel augmented, especially with the arrival of Siri Shortcuts. AirPods provide convenient sensory management and a voice interface to my cognitive net. I leave these in for hours at a time: playing music, setting timers and alarms, creating tasks in Things, and accessing the checklists that order my life. When not in my ears, they stow comfortably in the belly bag in the same pocket as the Vibes snap case (and some other stuff).

I forget I have these hanging from my ears. “Hanging” is the key to comfort. When I first got them, I was “inserting”. Ear burn came on quickly because their hard plastic was pressing against the ridge poking out along the top of my ear canal. Once I let go of the “you gotta push ‘em in there to not lose ‘em” anxiety and started hanging instead of inserting, comfort came.

Two taps to pause. Remove a bud to pause. Instant pairing. Siri Shortcuts. Disability means getting used to bad flow, flow not designed for you, flow not accessible to you. This is good flow that removes some thoughtlessness and frustration from my world.

I once heard a blind person say, “With my cane, my brain, and my trusty iPhone, I can go anywhere.” I agree with the statement completely, but it’s time to update that statement to the 2018 version:

Give me a set of AirPods to go with my iPhone, and I can go anywhere-and surreptitiously know a lot about my environment while doing so.

Source: Travelling into the Future: My Brain, my Cane, and my Trusty AirPods | Chelsea cook: Celestial girl

Sleep Mask

I’m light sensitive, so my go everywhere sensory kit also includes a sleep mask. I like ones with raised eye cups, such as the Wirecutter recommended Nidra Deep Rest. The Deep Rest rolls up compactly and fits comfortably in the large compartment of my belly bag right alongside my sunglasses.

Bluetooth Sleep Mask

Unlike the other parts of my sensory kit, I don’t carry this with me all the time. It’s usually on a bedside table, though I’ll loop it through the belt of my belly bag when I want to keep it with me, such as on a car trip.

I use the mask from Topoint as recommended by Brett Terpstra. The padded nose bridge lifts the mask off the eyes. There’s not as much eyelash clearance as the Nidra Deep Rest, so your lashes might brush the mask when you blink. With eyes closed, I have the clearance I need to be comfortable.

The controls are placed on the left cheek. After laying on my left side for awhile, the pressure is noticeable, though I can still fall asleep.

The controls are certainly not the easiest to use without looking, but I got the hang of it. Since I put the mask on when I’m ready to fall asleep to a favorite playlist or to a white noise generator, I don’t interact with the controls much anyway.

These don’t provide the isolation of an over-ear or ear buds, but they do a good enough job to put me in the sensory space I want to be in.

This mask sleeps hotter than the Nidra Deep Rest.

Sunglasses and Light-reactive Glasses

My bifocals have light-reactive, photochromic lenses that protect my light-sensitive eyes without having to swap into sunglasses whenever I walk outside.

Light-reactive lenses react to UV. Car windows block UV. I always keep a pair of dedicated sunglasses in my belly bag so I can use them when in the car or indoors.

I currently use polarized prescription sunglasses from Warby Parker to supplement my photochromics. Sunglasses make incompatibly lit rooms more hospitable. Wirecutter has recommendations for cheap non-prescription shades.

Beanie Hats

I always have a hat with me. They are an important part of my sensory management. Beanies are my go to because they’re light, packable, cover my ears, and provide gentle, even pressure to my scalp.

My lightest weight beanie is a Smartwool PhD Ultra Light. It stuffs down small enough to keep in my belly bag at all times. This hat can actually cool me down when out in the sun. It blocks some rays while wicking sweat. Sometimes, I put it on and immediately feel that evaporative cooling sensation.

It doesn’t go down over the ears as much as I’d like, though. I find myself trying to tug it down. Smartwool, a slightly longer PhD Ultra Light would suit me fine.

My go to beanie is the Smartwool PhD Light. It has the full ear coverage I like. It’s notably heavier than the Ultra Light since it is two layers instead of one, but it still packs down small enough to fit in the belly bag.

Smartwool’s The Lid comes out when I need a little more warmth. It’s too big to pack into the belly bag, so I loop it through the belt of the bag.

I like the fit and scalp pressure of Smartwool’s beanies.

Stim Toys

Beads are stimmy goodness. I make my own stim jewelry from beads and beading wire. I keep a stim loop attached to the belly bag. I put a finger’s width of slack in the wire of the loop so that I can spin and slide the beads. It can be used one-handed while attached to the bag or can be removed for two-handed play.

A stim loop made from brass ball bearing beads, turquoise heishi beads, copper basket beads, and irregularl shaped turqiouse beads with one flat side. Medium weight beading wire holds it all together. The loop rests on a white beading mat.
A stim loop made from brass ball bearing beads, turquoise heishi beads, copper basket beads, and irregularl shaped turqiouse beads with one flat side. Medium weight beading wire holds it all together. The loop rests on a white beading mat.
Another view of the stim loop resting on a green cutting mat with a white ruled grid.
Another view of the stim loop resting on a green cutting mat with a white ruled grid.

I use a length of light shock cord as a zipper pull. The stretch is stimmy goodness. I ran the cord through a piece of rubbery tubing. I enjoy the texture and the tug of this simple stim.

A yellow shock cord with rubber tubing attached to a zipper pull of the belly bag. My finger pulls the cord to demonstrate the stretch. A fuzzy pink pillow is in the background.
A yellow shock cord with rubber tubing attached to a zipper pull of the belly bag. My finger pulls the cord to demonstrate the stretch. A fuzzy pink pillow is in the background.

StimTastic sells lots of different stim toys.

Stimtastic is affordable stim toys, chewable jewelry and fidgets for autistic adults and teens as well as individuals with SPD, ADHD/ADD, dyspraxia . . . everyone who stims! Run by an autistic person, Stimtastic celebrates stimming as a natural part of our lives.

Source: About Stimtastic — Stimtastic

Happy Hands also sells a variety of stim toys.

Antsy Labs sells fidget cubes and spinners.

My family and I make and sell stimmy jewelry.

Communication Necklaces

Promote neurological pluralism and “opportunity but not pressure” with communication necklaces.

Pillows, Bedding and Bolsters

Any part of me that touches the world is gonna ache soon enough. Pillows improve my relationship with gravity, which pulls like a sickness.

Shredded Foam Pillows

I’ve tried various foam pillows over the years, but their heavy density and warm nature didn’t work for me. Shredded foam pillows fix these problems. Though heavier than down and poly fill, they’re not as heavy as the solid foam of old. The extra weight vs. the lighter fills gets you some moldability and conformability. I mold out space to accommodate my AirPods when side-sleeping. I can even mold out enough space for my big over-ear cans, though that’s still not quite comfortable.

Once again, I tried the WireCutter recommendation, the Xtreme Comforts Shredded Memory Foam Pillow (standard), and am happy with the result. The Extreme Comforts comes overstuffed, allowing you to remove the fill until you get the feel you like. I removed enough to stuff a small sham for use as a head pillow when lying against my shredded foam reading pillow. Shredded foam has taken over my bedding.

I don’t overheat in this pillow. Good temperature regulation and moldability without burdensome weight make for a pillow that works for me.

Reading Pillows

I can’t work without reading pillows. I work from bed. Reading pillows sit me up to where I can be productive at a keyboard.

After reading Amazon reviews on various reading pillows, I settled on the Linenspa Reading Pillow – Large Design for Adults – Shredded Memory Foam Blend Fill. I liked it enough to buy a second one. Shredded foam really works for me in this application. It conforms and supports nicely. The arms are in a good place for me and can be pushed aside when I don’t want them.

This pillow is big and rather heavy. I invert mine to fluff it every few days. The size makes the process a bit of a wrestle.

This pillow doesn’t provide head support (at least not at my 5’8” height), so I supplement with the shredded foam stuffed sham mentioned earlier. I made it the thickness I need to fill the gap between my head and the wall. Pillows that are stuffed even just a little bit too thick pitch my head forward uncomfortably.

Neck Pillows

Of the travel/neck pillows I’ve tried, only the Travelrest Ultimate Memory Foam Travel Pillow suits my needs because it removes the thickness at the back of the pillow so that my head doesn’t pitch forward. Pillows that don’t reduce thickness behind the head are non-starters.

Like so many travel pillows, the Travelrest presses against my AirPods and over-ear cans. Someday, I’ll find a pillow that removes the rear thickness, contours around headphones, and still supports my head when it’s lolling to the side.

I use neck pillows in the car and also, at times, while working from bed. There are days when my neck gets tired of keeping my head on.

Body Pillows

The Company Store Down-Free Fill Body Pillow is my cuddly alignment companion. I’m a dedicated side sleeper even though becoming a back sleeper would ease some pain. A full length body pillow reduces distracting shoulder and arm pressure and aligns my hips and knees.

Side-sleepers may find it comfortable to hug a body pillow, reducing pressure on the bottom shoulder and arm. It can also be comfortable to tuck the pillow between the knees, preventing the pelvis from tilting forward or backward: “If you sleep on your side without a pillow between your legs, the muscle fibers can get overstretched,” Ryan told us. Keeping the ankles separated and parallel during the night can also be comfortable, Ryan said, especially for people who experience swelling.

Source: The Best Body Pillow: Reviews by Wirecutter | A New York Times Company

A 72”, this pillow is longer than I am tall. I like that. It’s a feature The Company Store pillow has over others, as noted in the WireCutter review. I considered going with a shredded foam body pillow since it works for me in other applications, but decided to go with a lighter fill given the long length. I don’t regret it. The TCS body pillow has the right amount of loft, poof, and rebound.

Seat Cushions

I take a seat cushion everywhere I go, especially when navigating the usually awful chairs of the medical model. These make waiting in a doctor’s office more bearable.

I used to use coccyx pillows like the ComfiLife and the Aylio. Now, I use Purple seat cushions and will never go back to a coccyx pillow. I travel with the Purple Simply. One is always in the car. I use the thicker Purple Royal at home. If I’m sitting, it’s probably on one of these cushions.

The Wirecutter reviews Purple cushions in their guide to best ergonomic seat cushions.

Heating Pads and Blankets

I have too much kyphosis (curvature) in my spine. The result is constantly aching back muscles stretched like cables supporting a poorly designed suspension bridge. I pretty much live on a heating pad to ease the deep, abiding ache. Check out the Wirecutter recommendations for heating pads and electric blankets. I use their top recommendation, the PureRelief XL – King Size Heating Pad, daily.


I can’t hold a phone, tablet, or e-reader for long without hand, wrist, elbow, shoulder, and neck pain. I can’t use a laptop unless it’s positioned just right. So, I articulate all the things. I spend a lot of time in the supine; articulated tablet, laptop, and e-reader holders are a must.

Rolling Floor Stands

We have three LEVO Deluxe iPad Floor Stands that have survived years of continuous abuse. They are tough and stable. The kids use the arms as stim toys for fidgeting feet and even ride them around the house like scooters. These stands have held up through all of our indelicate attentions.

I glued large rare earth magnets (salvaged from some aquarium equipment) to their faces. I like magnetic phone attachment.

I roll these up next to the bed or couch whenever I’m spending time on my phone or e-reader. Not using them is to invite pain.

Monitor Arms

I clamp an Ergotron LX Tall Pole LCD Arm to my bed frame. It is fitted with an extension arm and a laptop tray. This provides the articulation I need to find a comfortable repose whether watching TV or sitting up against my reading pillow and typing. The tall pole provides mattress clearance, but if you have a super-thick mattress you might have to get creative with clamping.

I love this arm. It hovers my laptop over me in bed, making work possible. I’m glad I got the extra extension arm. It adds needed height to clear me in bed and extends its range to the width of the bed. I strap a UE ROLL 2 to the extension arm. This puts it at the prefect height and orientation to send sound up along my reclined body.

Consult Wirecutter’s monitor arm review for options.

Gooseneck Clip Phone Holders

Gooseneck phone holders aren’t so great for actually using your phone while mounted. They jiggle too much. However, when watching a movie in a hotel room where I don’t have my floor stand, they save a lot of pain. I clip one to my bedside table and throw it in a tote bag when I travel.

As with the floor stands, I glued a magnet to my holder. I got a clamp style holder, but the jaws are quite deep enough for my iPhone 7+ in a wallet case stuffed with cards. Actually, I glued a magnet to a small metal rolling tray that happens to fit the jaws of my holder. Holder clamps tray, magnet on tray hold phone. Magnetic versions aren’t as common, but I should try one.

Neck/Lazy Bracket Phone Holders

I’m always looking for ways to save pain while using my phone. Often, neither focal range on my bifocals is comfortable for reading because neck and shoulder pain limit the positions in which I can hold a phone. In such moments, I take off my glasses and put my phone on a GoWith [Magnetic Tablet & Cell Phone Holder worn around my neck. This way, I can position my phone exactly where I need it to accommodate both my eyes and my neck.

I usually use this when sitting outside reading. I’ll sometimes walk around with it on while running through household checklists.


Task Chairs

If you love your spoonie to the tune of 800 – 2000 bucks, I can recommend the Steelcase Leap, the Steelcase Think, and Soma Ergonomics chairs. We’ve had all three around the house for several years, and they are well-built survivors. The Leap is approaching twenty years old and still holding up comfortably.

Wirecutter recommends the Steelcase Gesture. I’ve never tried it, but I’m sure it’s good.

Portable Moon Chairs

Moon/saucer chairs certainly aren’t for everyone, but I take a big CORE padded moon chair or KingCamp Sofa moon chair with me to outdoor events. I use them at home too for lounging outside. I like the room big saucers provide, and they support my curved back more comfortably than upright chairs.

A light, cheap, packable option for brief sits is the Coleman Event Stool.


Standing Mats

I couldn’t cook or wash dishes without standing mats in the kitchen. These extend my functional time and reduce painful bouts of sciatica, paresthesia, and fasciculations. I use the Imprint flat mat suggested here.


I use a few mobility devices to extend my range and stay below thresholds.

Folding Walking Canes

My Switch Sticks folding walking cane has been a reliable companion. Adjustable and durable, this fits and hasn’t let me down. They come in many colors and patterns and are tote bag stuffable.


With a Flipstick, I always have a seat with me. I put a padded bicycle seat on mine and cut a hole through it to provide access to the button that locks and unlocks the seat.

When I’m waiting in a chair in a doctor’s office, I lean forward and support my head on the Flipstick’s seat. My kyphosis pitches me forward. With the Flipstick, I can go with my tendency to lean and be supported. I use it in this mode more often than I use it as a seat.

This seat has saved me when caught in unexpectedly long queues without a rollator or wheelchair. It’s not exactly comfortable, but when my legs are ready to buckle, I’m glad I have it. When sitting on this, form a tripod with your legs and the stick.

There is a little slop in the seat mechanism and the collapsible sections. The Switch Stick has a tighter fit and doesn’t have a rattly flip seat. If you can’t stand any rattle or slop in your collapsible canes, the Flipstick might be a bad fit.


My Drive Medical rollator has also been reliable. It assists me on longer bouts of walking and avoids the often fruitless search for seating. I sometimes wish I had a side-folding rollator for navigating narrow doorways, but those are more expensive, and the seat hinges down the middle, which bothers some.

Wheelchair Upgrades

Spinergy wheels, Surge handrims, Schwalbe Marathon Plus tires, and izzy wheel covers are popular upgrades many wheelchair users would love to have. Check with them first; wheelchairs are very personal.


Water Bottles

Always be hydrating. We have several 27 ounce Klean Kanteens in the house. I always have one with me. Make sure you get the version 3.0 Sport Cap. These have a satisfying flow and chug. They’re dialed in just right for my preferences. Once again, check out Wirecutter’s review and survey of the field.

Travel Mugs

The Wirecutter recommended Zojirushi 16 ounce stainless steel travel mug is one of my favorite things. The opening action on the button and flip cap is reliable, stimmy goodness. The cap closes with a satisfying click. The flow is just right. The heat retention is superb. Bed-time tea is often still hot enough in the morning to enjoy.

The Toes Knows

Be kind to your feet.

Cozy Slippers

Cozy slippers make life better. The toes knows. (Dammit, Kevin Spacey, you’ve ruined this reference.)

I like to sit outside, even as the temperature drops. Baffin Base Camp booties are sleeping bags for my feet that keep my feet warm through a full winter season of porch sitting. They’re great in the house too.

I slip contractor boot covers over mine when I want to trudge around in them outside.

Custom Orthotics

Custom orthotics are one of the best investments I ever made. I’m a flat-footed over pronator who’s had a lifetime of grief with my feet, including having my feet forcibly shaped by hard plastic orthotics as a kid.

The orthotics of today aren’t those wretched things I had as a kid. For too long, that childhood experience prevented me from giving orthotics another go. I don’t walk more than 20 steps without the 3/4 length orthotics I have now. Without them, even a brief walk of just one minute induces foot pain.

My podiatrist used a plaster cast method, and I’ve been very happy with the results. A portable cast of your foot transforms every shoe.

If you want to change the life of someone with foot issues, spring $500 for custom orthotics.

Motion Control Shoes

My go to motion control shoe is the Brooks Beast. These are expensive shoes, so expensive that I wear them years longer than I should. Funding fresh motion control kicks for the over pronator in your life is a nice move.

Yankz and Lock Laces

Our dyspraxic family uses Lock Laces to avoid knot tying. Yankz is a similar brand. I’ve never owned Yankz, but I see both them and Lock Laces recommended in the #ActuallyAutistic community. The main difference seems to be the tensioning clip in the Yankz. I don’t need that part.

Accessible Shoes

There isn’t much selection in accessible shoes, making Nike’s Flyease all the more appreciated. Every shoe company should have an accessibility line. We buy Flyease.


Clothing and texture preferences are very personal. Here’s what’s compatible with me and my sensory needs.

Zipper Hoodies with Pockets

I like soft cotton and micro fleece hoodies with zipper fronts, ample hoods, and plenty of pockets. I live in hoodies. I recede into their comforts. They provide sensory insulation.

My current hoodies are the SCOTTeVest Cotton Hoodie and Microfleece Hoodie. The SCOTTeVest hoodies cover my requirements:

  • Soft
  • Zipper front
  • Ample hood
  • Divided hand warmer pockets

And some of my nice to haves:

  • Top-drop pockets
  • Thumb holes in the cuffs
  • Too many pockets
  • Eye mask built into the hood
  • YKK zippers

I have limited shoulder flexibility and cramp readily when trying to shimmy out of long sleeve pullovers. All of my outerwear has a means of escape, preferably a YKK zipper.

Thai Fisherman Pants

Inexpensive, comfortable, and capable of being both your fat pants and your skinny pants, Thai Fisherman Pants are what I wear pretty much all the time. I get mine from Amonchai.

Thai fisherman pants are secured with a knot. Knot tying isn’t accessible to everyone. I still have enough hand dexterity to tie bow knots, so I haven’t had to work around the knot requirements of fisherman pants.

BTW, if you tie shoelaces using the bunny ear method, you might be tying Granny Knots instead of more secure Reef Knots. I did this for a long time before habituating myself to switch my starting knot from left over right to right over left.

Of the three common knotting techniques, the Two Loop Shoelace Knot (or “Bunny Ears” method) is probably the one that is most often tied incorrectly. The technique consists of one knot tied with loose ends followed by a second knot tied with loops. People naturally tie both stages exactly the same way, resulting in a “Granny Knot”. This has given it a bad reputation as an inferior knot – whereas it’s actually quite secure if tied correctly.

…if you currently tie your starting knot: “Left end over Right end & through”, simply change it to: “Right end over Left end & through” – or vice versa.

Source: Ian’s Shoelace Site – The “Granny Knot”

Tracking and Finding

Tile Trackers

Medications and chronic pain can increase distractibility and impact cognition. I attach Tile trackers to keys, canes, headphones, purses, and bags. I attach one to the key leash of the belly bag. Searching for necessary coping tools while grimacing with pain is frustrating and dispiriting. Tile trackers provide a comforting cognitive net.

Double pressing the button on the Tiles rings your phone. With a Tile on my belly bag (as well as on my headphones and canes), I’m always able to summon my phone from its hiding places in the depths of couches and bedding.

They have to be replaced each year, which gets expensive. Tile recently released a Pro Tile with a replaceable battery. Next time I have to replace one, I’ll try a Pro.

Eyeglass Chains

Tiles are too big to put on eyeglasses. Luckily, there’s a superior eyeglass locating technology: eyeglass chains. Put chains on your glasses and never wonder where they’re at again.

As I became more presbyopic, I found myself losing track of my glasses because I’d take them off to read and see up close. Putting my eyeglasses on a chain has saved me a lot of frustrated searching.

Etsy sellers have a wide selection of eyeglass chains.

Cutting and Opening

Utility Knives and Scissors

A good utility knife and a good pair of scissors assist package opening chores and household cutting. In our dyspraxic, repetitive-strain-wracked household, we cut instead of pull, rip, and tear. The Wirecutter recommendations for utility knife and kitchen scissors have served us well.


Utility/Grocery Carts

I picked the Wellmax WM99024S Grocery Utility Shopping Cart from the competition based on Amazon reviews. I haven’t had cause to regret the choice. When driving to out of town hospitals and staying in hotels, the cart handles schlepping our coping array to and from the car. At home, we use it for bringing in groceries from the car.

Save trips and save your back. Get some wheels.

Music and The Golden Age of Television

TV is a balm when in pain, out of spoons, and confined to bed. Get a video streaming subscription for your favorite #ChronicLoaf. Note that Hulu is negligent in providing audio descriptions, so pick another service for Blind and visually impaired folks.

Music helps manage sensory overwhelm and is an unguent for souls. Spotify and Apple Music subscriptions cover every mood.

Here, enjoy a minimalist chill. The repetitive structures of minimalist compositions are part of my sensory management.

The Future is Accessible, Accessibility Matters, and Ableism is Awful Apparel

Support disabled people, and spread the message of accessibility. Accessibility Matters and The Future is Accessible apparel are not always available (the campaigns run for limited time windows), but grab something for the spoonie in your life when they are. If the campaigns currently aren’t open, hit the “I Would Buy This!” button to signal interest in the next campaign.

Sex Toys

Masturbation reminds you that your body is about more than pain. Get some toys. The Magic Wand is a good general purpose massager and sensory stimulator. Again, I’ll rely on Wirecutter recommendations since they show their work and offer alternatives.

Medical Marijuana

A #ChronicHolidays guide doesn’t feel complete without some chronic. Medical marijuana is a life saver for many. It’s an ally to disability and neurodivergence. It eases chronic pain, aids sleep, reduces sensory overwhelm, and heads off overwhelm and PTSD-induced meltdown. I prefer vaporizing hash oil concentrates, especially at bed time, but combusting a joint while amidst nature appeals to a Promethean and free wildling part of my nature. Here are suggestions for grinders, rolling supplies, dry herb vaporizers, and concentrate vaporizers.

Dry Herb Grinder

I currently use a large Space Case Grinder Sifter. Larger diameter cases are easier on my hands and wrists. The threads on this case are fine and need to be kept clean. 99% isopropyl helps with that and all medical marijuana related cleaning needs. I’d prefer something with coarser, less-cloggable threads, but as long as I keep the threads clean I can get by. The Wirecutter has grinder recommendations, but I haven’t tried any of them.

Dry Herb Vaporizers

I’ve tried several dry herb vaporizers over the years. Most did not stay in my rotation long. The AirVape X bucks that trend. It has a minimal air path, which means less cleaning. The large rim funnels down into the oven, which means less spilling of precious medicine.

The AirVape X is the Wirecutter recommendation for dry herb vaporizer. Check out their review for details on why this vape is easier to use than others.

Rolling Papers and Tips

I use RAW organic hemp rolling papers and tips. I always roll with rolling tips (also called crutches or roaches). They make hand rolling easier and provide a more comfortable burn as you get to the end of your number. You won’t have incendiary hippie grenades hitting the back of your throat if you z-fold your rolling tip. If you don’t have any rolling supplies, kits that include a rolling tray, rolling machine, rolling paper, rolling tips, and a doob tube are convenient.

About Botanicals

Cannabis is a botanical. That’s means the possibility of allergies, especially when combusting dried flower. If you’re sensitive to botanicals, concentrates like butane hash oil (BHO) will better suit you. BHO uses butane as a solvent. Most of it is purged off, but if you’re sensitive to butane try a solvent-less concentrate like rosin.

Concentrate Vaporizers

I prefer inhaling my meds. Vapor is the most bio-available delivery method. Inhaled vapor gives instant relief and dosing feedback since it goes straight to the brain.

For concentrate vapes, I’ve had good luck with Linx products. I’m currently using the Linx Ares Honey Straw. It’s straw design means there are more surfaces in the air path, which means more cleaning. I clean it with an alcohol wipe every time I recharge and haven’t had any problems with it so far. When kept clean, straw and nectar collector designs provide the best flavor and cleanest hits. If you enjoy terpenes and revel in the taste of living green, try a straw design. With straws, you can dab straight from wax paper and silicone or glass containers. They’re not as discrete or handy for vaping on-the-go as pens though. The setup I like is a pen for continuous micro-dosing during the day and a straw or e-rig for heavier dosing at night.

I’ve used and enjoyed the Dr. Dabber Aurora. The magnetic sections are wrist friendly, but I found that the mouthpiece would come loose in my pocket. I fixed that with a piece of gaffer tape. Dr. Dabber has responsive customer service and stood by their product when I broke the ceramic pin on my Boost e-Rig.

Something to keep in mind with concentrate vaporizers is that you will have to regularly replace the atomizers (or heating tips for straw style devices). They get gunked up with resin over time and must be replaced. Factor the price of atomizers/tips and 99% isopropyl alcohol into the total ownership cost.

Here’s a survey of popular vape pens.

With all of these devices, you have to keep them clean, clean, clean. Always have 99% isopropyl handy. Amazon offers bottles by the case.

Silicone Water Pipes

I got tired of breaking glass water pipes and went silicone. I ended up with a Waxmaid. Other popular brands are Strong Silicone and Roll Uh.

Quartz Bangers

Turn that silicone water pipe into a dab rig with a quartz banger. I’ve used domed and domeless nails of all sorts. My preference is the quartz banger. They’re easy to use and provide a clean hit.

A water pipe with a quartz banger is an enjoyable way to apply a bed time dose.

A Good Torch

I’ve gone through a lot of torches. The only one to last more than 6 months is the Blazer Big Shot. Mine still strikes after almost 6 years of regular use.


There are a lot of hemp-derived CBD (cannabidiol) products on the market right now. They are currently legal in all 50 states in the US. There are a lot of rip offs out there, so watch out.

CBD is a cozy blanket of calm. I don’t find the hemp-derived CBD concentrates to be as effective as marijuana derived concentrates, but they still help.

In my experience, CBD works better in concert with THC. 1:1 CBD:THC products suit me nicely. If you don’t have access to medical marijuana derived CBD, the hemp stuff will certainly suffice. CBD can help reduce dependence on opioids. If you experience opioid constipation, CBD could be a life changer.

CBD concentrates comes in many forms. Crystals are flexible and multi-use. You can sprinkle them on food, swirl them in drinks, cook with them, and even dab them with dab rigs, vapes, and straws.

Dabber’s wax is the most convenient for dabbing.

Vape cartridge’s screw onto any vape pen with 510 threads. Cartridges are great for micro-dosing throughout the day.

I’m still auditioning hemp-derived CBD makers. Here in the Austin Texas area we have Ziggy’s Naturals.

Medical Marijuana Accessibility

It’s rare that I see reviews address the accessibility of devices. Every vaporizer I’ve used requires 5 quick button clicks to turn them on and off. This interaction is not so accessible. Grinders often have fine threads that are difficult to line up and clog quickly. Companies need to be more attentive to disability. I long for someone to take disability and accessibility seriously in their design, marketing, packaging, and customer support. Cannabis is medicine, after all.

“Timeless Learning” on the Biodiversity and Terroir of Learning

When learning is allowed to be project, problem, and passion driven, then children learn because of their terroir, not disengage in spite of it. When we recognize biodiversity in our schools as healthy, then we increase the likelihood that our ecosystems will thrive.

Source: Timeless Learning: How Imagination, Observation, and Zero-Based Thinking Change Schools

The right to learn differently should be a universal human right that’s not mediated by a diagnosis.” This book gets that. This is equity literate contemporary progressive education compatible with neurodiversity and the social model of disability. The book describes the already implemented policy and culture at the authors’ school district in Virginia, USA. Very cool.

Selections from “Timeless Learning” on biodiversity and terroir:

To be contributors to educating children to live in a world that is increasingly challenging to negotiate, schools must be ​conceptualized as ecological communities, spaces for learning with the potential to embody all of the concepts of the ecosystem – interactivity, biodiversity, connections, adaptability, succession, and balance. These concepts have become a lens through which we consider and understand the schools we observe and what makes learning thrive in some spaces and not others.

The problem is that standardization becomes the antithesis of creativity in schools. There’s no “follow the questions” inquiry or problem‐ and project‐driven assessments in standardized classrooms. Covering the standardized curricula means rejecting the biodiversity of communities that have the potential to generate new ways of thinking based on their own unique environments. Those statistical norms that drive much of standardized practice seem to be built for mythical school communities, model neighborhood schools where we expect students to succeed in the same way. Using “teacher‐proof” assessments and programs makes a lot of sense if the goal is one‐size‐fits all schooling. The programmed learning of today—moving through curricula paced to finish on time for testing and using filtered pedagogies designed to maximize standardized testing results—is just twentieth‐century efficiency and effectiveness, carrot and stick, management by ​objective, modernized through contemporary technologies and infused with algorithmic monitoring systems.

But in our work, we have learned that no average human exists, no median community does either. And we have learned that human learning is messy and complex, and that childhood, especially, is very messy, and very complex. Authentic opportunities for learners to create, design, build, engineer, and compose cannot truly coexist within the standardization model. That’s why tinkering around the edges, adding a “genius hour” to an otherwise unchanged school day, accomplishes nothing except to highlight all that’s wrong with our schools for this century.

A school cannot change without system change. Nothing can.

It is reckless to suppose that biodiversity can be diminished indefinitely without threatening humanity itself.

– E.O. Wilson Biodiversity Foundation (n.d.)

It doesn’t take long to figure out when observing the natural world that biodiversity creates pathways for organisms to not just survive, but also to thrive within ecosystems. Unlike the cornfields of Michigan where row after row of hybrid plants are identical to every other one, nature seems to appreciate differences among species. It’s a way of foolproofing longevity that stretches back generations across millennia, and the variety within and among species tends to support an entire ecosystem to sustain balance and thrive. In the scientific world, geneticists worry about our dependence upon crops that have been standardized genetically. The hybrid tomatoes keep longer in the grocery store, but the scientists know they are subject to potential blights that can wipe out the entire crop in a short period of time. It’s happened before – with corn, potatoes, and citrus crops. It’s why plant geneticists recommend never becoming reliant upon a single hybrid. It’s why ecologists know that biodiversity matters in an ecosystem. It’s the opposite of what we are doing inside the human ecology of our schools.​

We need variety and biodiversity in schools, too. The walls of schools are a contrived barrier that keeps kids and teachers apart within the system. The walls of schools keep new practices, tools, and strategies out and traditions in. When we think about creating a biodiversity of learning, we turn to new ways of thinking about how systems change. That doesn’t happen without removing barriers that wall off the potential for change. We have found that breaking walls is best interpreted through the ecological lens as defined by the work of Yong Zhao and Ken Frank, who framed the problem of introduction of a new species in Lake Michigan as having similarity to introducing a new practice, tool, or strategy into a school (ETEC 511 n.d.).

We also believe in the concept of terroir, used so beautifully as a metaphor by Margaret Wheatley and Deborah Frieze in Walk Out Walk On – that the soil and climate of two different continents produce variations in crops even when the seeds planted are the same (Wheatley and Frieze 2011). Schools are like that, too. Two schools may be situated in different terroir even though children work and play similarly no matter where we visit. However, those children grow up in different cultural contexts that shape what they bring with them into school. Educators do the same. Because of that, each school represents a unique identity, one shaped locally, not by the federal government. While school communities certainly benefit from cross‐pollinating of ideas and resources, allowing them to localize their identity makes a lot of sense when it comes to figuring out what children need to thrive as learners.

Together the concepts of biodiversity and terroir combine to support the idea that schools in different localities need the freedom to be different. It doesn’t mean that neurology research shouldn’t drive educators’ understanding of how children learn and the pedagogies they need to use in response to that understanding. It doesn’t mean a curricula free‐for‐all instead of a ​coherent focus developed locally. It doesn’t mean there shouldn’t be any sense of standards at all for what’s important to learn in and across disciplines. It does mean that broad parameters should allow children who need to learn about simple machines to do far more than simply memorize them for a test. It means that if a child or class is obsessed with simple machines, they don’t need to stop immediately to begin studying phases of the moon. When learning is allowed to be project, problem, and passion driven, then children learn because of their terroir, not disengage in spite of it. When we recognize biodiversity in our schools as healthy, then we increase the likelihood that our ecosystems will thrive.

Four Actions to Increase Learning Biodiversity in Your School Community

  1. “We need more than a genius hour once a week to build learning agency” (Genius Hour n.d.). Analyze how covering content standards for a test at the expense of creating a deep context through exploration of integrated content and experience impacts students in your class, school, district. Write this down and share your perspectives with colleagues. What can you together do to begin to tackle the problem of coverage at the expense of learning?
  2. Add a small makerspace in your room or school. It can be anywhere and it doesn’t need to have a lot of expensive technology to get it started. Our librarians say that glue sticks, cardboard, and duct tape are a great start to building a makerspace. Ask students “What do you want to make?” Watch them and see what happens.
  3. When you use project‐oriented learning, break the parameter rules by reducing your own constraints on what students can do. Give choices. Get kids to ask questions about what they want to learn. Teach kids the McCrorie ISearch approach and let them construct projects in first person versus third person (Zorfass and Copel 1995). Accept different media submissions from videos to websites, not just a poster or a written report.
  4. Unschool your projects. Abandon an “everyone does the same project” approach. Make more white spaces in your day to move beyond the standards. Begin by asking learners what they are interested in. Grab inspiration from their responses and find connections from their interests to questions they might pursue. Look for curricular intersections as you support them to collaborate with each other in pursuit of learning that’s intrinsically interesting to them. If you are tethered to standards, creates spaces every day for students to explore outside of that box using technology including ​devices, books, maker and art supplies, and experts in and out of class. Teach your children with their intrinsic drive in mind. Get them talking with each other. Record their questions. Make opportunities to share their work with their parents, the principal, and others in class. Invite parents into the community for learning exhibitions that represent biodiversity.

Source: Timeless Learning: How Imagination, Observation, and Zero-Based Thinking Change Schools (Kindle Locations 761-766, 1500-1513, 4999-5009, 5066-5086, 5435-5453). Wiley. Kindle Edition.

More selections from the book are available on my commonplace book.