Wellness, Ableism, and Equity Literacy

Disability is a form of diversity, not a synonym for unhealthy.

Source: Ableism is the wellness issue we’re not addressing | Well+Good

Wellness is oblivious to its pervasive ableism.

The idea of wellness centers around being the best we absolutely could be by embracing healthy lifestyles and habits, but makes one big assumption: we are all able-bodied, and most issues are solvable through healthy eating, exercise, and potentially even expensive products. Baked into this is a healthy dose of ableism-preconceived notions and stereotypes towards people with disabilities. Whenever I look at trends surrounding food choices, exercise, or products, the people speaking about them or benefitting are overwhelmingly able-bodied.

For wellness to be fully inclusive, it needs to feature bodies that don’t look and move the way an “ideal” standard might. Most importantly, we need to be part of the industry’s conversations as a demographic that gets told we are unwell, but lives the healthiest lifestyles we can given limitations from our brains and bodies. To dismantle the ableism problem in wellness, this means a large industry needs to begin featuring and consulting people with chronic illnesses, intellectual and developmental disabilities, and physical disabilities as well—because being alive, capable of self-acceptance, and being our best selves should truly be for everybody.

Source: Ableism is the wellness issue we’re not addressing | Well+Good

Representation and NAUWU principles matter and make things better. I’ve dabbled with Apple Fitness+ within the limits of my chronic conditions. I appreciate the disability representation and diversity I’ve seen on screen so far. More, please.

To be effective, wellness needs to get equity literate, get structural, and design for real life.

Beyond their community health activism and their work to establish organizational wellness practices and spaces, the revolutionary groups of the ’60s and ’70s also understood that political education, fighting in the streets, and engendering reforms and services for their communities were inherently therapeutic and empowering. “Part of being a healthy human being is reclaiming your dignity,” says Dr. Bassett. “To stand and fight is an act of self-preservation and an act of reclaiming one’s health.”

The group of teens and young 20-somethings conducted several operations that helped lead to reforms. In Chicago, members followed the model laid out by the Black Panthers and tackled food insecurity with grocery giveaways and a free breakfast program. Additionally, the Young Lords established a free clinic that included a dental program as well as education on health and nutrition. In New York City, it initiated free food programs, provided political education with its Palante newspaper and weekly radio show on WBAI, and recruited members to escort children to school safely. Moreover, they organized famously gutsy actions that served the community with preventative care and forced an otherwise negligent government to take notice and start heeding the needs of marginalized communities.

Source: Historically, ‘Radical’ Groups Have Often Positively Impacted the State of Wellness and Health in the U.S. | Well+Good

Via:

Diversity, Equity, and Inclusion Blogging

I haven’t had the anxiety or pain budget to do much in-the-trenches advocacy and DEI work with y’all, but I manage to publish some neurodiversity and DEI related posts as I go about my reading. Here are a few months of highlights.


I particularly recommend the study I quote in “Neurominorities, Spiky Profiles, and the Biopsychosocial Model at Work” to all DEI and HR workers.

Neurominorities, Spiky Profiles, and the Biopsychosocial Model at Work

Selected quote:

The aim of occupational accommodations for neurominorities is to access the strengths of the spiky profile and palliate the struggles.


A “design for equity, inclusion, and pluralism” cheatsheet, of sorts, that I use to remind myself:

Just Sayin’

Selected quote:

There is no path to equity that does not involve a direct confrontation with inequity.

Inequities are primarily power and privilege problems.

Source: Basic Principles for Equity Literacy


Cognitive diversity exists for a reason. Selections on neurodiversity evolutionary history with dollops of positive niche construction, collaborative morality, and cultural evolution:

Cognitive diversity exists for a reason.

Selected quote:

Human cognitive diversity exists for a reason; our differences are the genius – and the conscience – of our species.

Source: A Thousand Rivers – Carol Black


The fidgets that got me through 2020:

Favorite Fidgets 2020


Image work diversity fails our realities.

Image Work Diversity vs. The Reality of Me

Selected quote:

“They wanted to have my presence, but not me exactly. They wanted to have the idea of me being at Google, but not the reality of me being at Google,” Gebru said.

Source: Researcher Timnit Gebru Says Google Wanted ‘My Presence, But Not Me Exactly’ : NPR


Are we using the right amount of strategic essentialism with our Employee Resource Groups?

Strategic Essentialism and Employee Resource Groups


We all need some digital sociology if we’re gonna be in the platform business.

The need for digital sociology is now.


“Nothing about us without us” is an ethical prime directive.

Dr. Gebru, NAUWU, and DEI

Selected quote:

I first heard the expression “Nothing About Us Without Us” in South Africa in 1993. Michael Masutha and William Rowland, two leaders ofDisabled People South Africa, separately invoked the slo- gan, which they had heard used by someone from Eastern Europe at an international disability rights conference. The slogan’s power derives from its location of the source of many types of (disability) oppression and its simultaneous opposition to such oppression in the context of control and voice.

Source: NOTHING ABOUT US WITHOUT US: Disability Oppression and Empowerment


“Do not be the oppressor” is another guiding star. Check this talk for how to do more than image work diversity.

Do Not Be the Oppressor: Unlocking the Power of Employee Resource Groups

Selected quotes:

“Show me the money, and I’ll show you the outcome.”

“How are you gonna drive a DEI strategy with absolutely nobody in place to maintain continuity and accountability?”

“If you don’t have a dedicated person, how do you further this work?”

Obviously and exactly, yet so many companies lack a DEI head, including my own.


None of us should be in the behaviorism business.

The Problem with Behaviorism

Selected quote:

Skinner won; Papert lost. Thorndike won; Dewey lost. Behaviorism won.

https://rnbn.blog/2020/10/10/2121/


A reflection on past iterations of me:

Tech Ethics, Roaming Autodidacts, and the White-Male Effect

Selected quote:

I very much resemble the roaming autodidact. Tech and open source are full of us. It took longer than I’d like to admit for me to recognize the white-male effect in my own thinking. “A form of cognition that protects status” is an apt summary, especially for roaming autodidacts who’ve lived and believe the meritocracy myth.


So much whelm.

Titrating the Whelm: Perceptual Capacity and Autistic Burnout

Selected quote:

The divergent ways in which we process the world around us can also leave us fatigued and sapped of energy, as autistic people have “higher perceptual capacity” than our neurotypical counterparts, meaning that we process greater volumes of information from our environment. Autistic people commonly use the concept of ‘spoon theory‘ to conceptualize this experience of having limited energy resources.

Source: Doing More by Doing Less: Reducing Autistic Burnout | Psychology Today


So much stress.

Autism, Trauma, and Stress

Selected quote:

Recently it has been suggested that individuals with ASD are at an increased risk of experiencing potentially traumatic events and being significantly affected by them (Haruvi-Lamdan et al., 2018; Kerns et al., 2015).

Source: Autism Spectrum Disorder and Post-Traumatic Stress Disorder: An unexplored co-occurrence of conditions – Nirit Haruvi-Lamdan, Danny Horesh, Shani Zohar, Meital Kraus, Ofer Golan, 2020


Hannah Gadsby on social anxiety, social exhaustion, routine, masking, autism and gender norms, being perceived as angry, getting feedback, observing patterns, competition, autistic stereotypes, processing time, autistic appreciation of comedy, diagnosis and misdiagnosis, functioning labels, toxic masculinity, thinking in terms of neurobiology instead of gender, eugenics, patriarchal devices, storytelling, comedy and trauma, neurodivergence in comedy, cruelty in comedy, fitting in, shame, failure and success, and religion:

https://rnbn.blog/2020/12/19/2165/

Selected quote:

What is yourself? It’s a way of being in the world that doesn’t feel exhausting.


I discovered “Uncomfortable Labels: My Life as a Gay Autistic Trans Woman” through the Queer ERG at work. Here’s a selection on internet socialization:

https://rnbn.blog/2020/12/19/2169/

I added that to my “Written communication is the great social equalizer” post:

https://rnbn.blog/2020/12/21/2173/

And another relatable quote, this one on isolation and sensory overwhelm:

Overwhelm and Isolation: It’s pretty hard to feel alone in a world this constantly loud.

The whole book is full of relatable moments.


Currently reading:

Selected quotes.


What DEI stuff are y’all reading and blogging?

Just Sayin’

Design for real life.

Design for pluralism.

Solve for the infinity.

Foreground complexity as the baseline.

Multiplicities are an intention: We build the best collaboration, the deepest learning, when we expand the opportunities for complex vision.


Design is tested at the edges.

Compassion is not coddling.


Human cognitive diversity exists for a reason; our differences are the genius – and the conscience – of our species.

To face the challenges of the future, we’ll need the problem-solving abilities of different types of minds working together.

Neurodiversity may be every bit as crucial for the human race as biodiversity is for life in general.

Difference is not our deficit; it’s our operating system.


The right to learn differently should be a universal human right that’s not mediated by diagnosis.

Written communication is the great social equalizer.

To not presume competence is to assume that some individuals cannot learn, develop, or participate in the world. Presuming competence is nothing less than a Hippocratic oath for educators.

Noncompliance is a social skill.

It’s not about behavior.

Design learning where there is no option for oppression.


There is no path to equity that does not involve a direct confrontation with inequity.

Inequities are primarily power and privilege problems.

You cannot counter structural inequality with good will. You have to structure equality.

We are all accountable to the urgent work of building a more just, more equitable world.


By focusing on the parts of the system that are most complex and where the people living it are the most vulnerable we understand the system best.

When we make things for people at their worst, they’ll work that much better when people are at their best.

Everything we do publicly can be made more inclusive and uplifting with intersectionality, and everything we do can become exclusionary and oppressive without it.

When we build things – we must think of the things our life doesn’t necessitate. Because someones life does.

A mismatched interaction between a person and their environment is a function of design. Change the environment, not the body.


Fix injustice, not kids.

Free, life-changing, and available to everyone.

Provide freedom to those who deal with a world that’s built to be hostile toward them.


Nothing about us without us.

We exist as friction.


Embracing pluralism is good citizenship. Democracy demands equal accommodation.

Default to open.


Do not be the oppressor.

People suffer, and when they do, it’s for a reason.